Monday, October 13, 2008

Music and Healing for SMA


Joy, sorrow, tears, lamentation, laughter – to all these music gives voice, but in such a way that we are transported from the world of unrest to a world of peace, and see reality in a new way.
--Dr. Albert Schweitzer


Last year was the 25th anniversary season of the Longwood Symphony which we marked by bringing together multiple organizations with shared visions, and by introducing a new way of communicating our music and healing, a symposium series called Community Conversations. This year, our 26th season, focuses on music and healing for those affected by neurodegenerative disease. Midway through the year, our Community Conversation will be a symposium on the use of the arts as a means of healing.

The care of a family member with a neurodegenerative disease is complex. Beside the multiple doctor’s appointments and variety of therapies there are braces, wheelchairs, and so many other things to attend to. With children, one adds daycare, access, and education. And the list goes on.

Families of Spinal Muscular Atrophy chose to use their concert on Saturday not to raise funds as much as to raise awareness. Jim Gaudreau spoke simply and caringly about the nature of the disease, how it has affected his family, and his seven-year old daughter. Many in the audience said “I learned something tonight, and was moved.”

FSMA honored Dr. Laurie Glader, a special physician whose compassion, understanding, and ability to make things happen has smoothed the road for so many parents and families.

Dr. Glader, a pediatrician in the Complex Care department of Children’s Hospital Boston accepted graciously and spoke eloquently. Dr. Glader’s father, Dr. McCarthy, here in Boston for the American Academy of Pediatrics meeting, looked on proudly.

Creativity, Caring and Community. For me, the moment that is magical at every concert is when I feel and see the orchestra transform. The words, dedication, and passion of Jim Gaudreau as a caring father and that of Dr. Glader as his physician touches the musicians on stage as well as the audience. I see it on the faces of your youngest medical students and most experienced physicians alike. It is the recognition of how our music itself is healing.

Suddenly, even beyond the power of Brahms and pure beauty of the symphony itself, the music is an extension of the work we do day to day.


Perhaps it is captured best by the last person to bid us goodnight at the end of a moving evening. She said “You played the music like it is part of life—I heard and felt all of the emotions. I really got what you were trying to say.”



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